Children with Genetic Disorders receive grant

Children with genetic disorders receive grant from Genetic Disorders UK/ Jeans for Genes campaign.

Inclusive Skating is celebrating after receiving the news they will be given a grant from Genetic Disorders UK, the national charity that organises the annual fundraising day, Jeans for Genes Day. This donation will be used to fund the Inclusive Skating for Genes British Championships.

Margarita Sweeney-Baird said: “This grant is wonderful news. It means we can fundthe first ever ice skating event specially for children with genetic disorders. Having the opportunity to take part in a beautiful sport like ice skating means so much to the children and gives them great joy.  The look of amazement and pride in the faces of their friends and families when they see what the Inclusive Skaters can do is inspirational.”

Genetic Disorders UK’s Jeans for Genes Day is an annual fundraising event when school children and office workers wear their jeans in exchange for a donation.

Although individually genetic disorders are rare, together they affect 1 in 25 children. This means that more than 30,000 babies each year are born in the UK with a genetic condition. Sadly, genetic disorders and their associated health problems mean that they are the biggest cause of death of children aged 14 years and under. Funds from Jeans for Genes Day are granted to specialised charities to provide care and support for children affected by genetic disorders. This year Jeans for Genes Day will be held on Friday 22 September.

Caroline Harding, the CEO of Genetic Disorders UK said: “We are delighted to be helping Inclusive Skating support all children with genetic disorders. Our grant programme is open to all UK support groups and registered charities who work to improve the lives of children and families affected by genetic disorders. In 2016, 21 charities benefit(ed) from the funds raised by the public on Jeans for Genes Day.”

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